To create a better tomorrow for ourselves and our children through education and public awareness!
Welcome to Moebius Syndrome Foundation Africa M
S
F
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M S F A is here to support the individual with Moebius Syndrome and other related disabilities.
M S F A furthermore support family members and friends of individuals with Moebius Syndrome.
The purpose of this website is to provide information, as well as to promote greater awareness and understanding of Moebius syndrome.
M S F Aadvocate for scientific research to advance the diagnosis and treatment of Moebius syndrome and its associated conditions.
Here we will share information that you will find helpful on your journey with Moebius Syndrome.
Our smiles come from our hearts!
M S F A is here to support the individual with Moebius Syndrome and other related disabilities.
M S F A furthermore support family members and friends of individuals with Moebius Syndrome.
The purpose of this website is to provide information, as well as to promote greater awareness and understanding of Moebius syndrome.
M S F Aadvocate for scientific research to advance the diagnosis and treatment of Moebius syndrome and its associated conditions.
Here we will share information that you will find helpful on your journey with Moebius Syndrome.
Our smiles come from our hearts!
Möbius syndrome From Wikipedia, the free encyclopedia
Möbius syndrome (also spelled Moebius) is an extremely rare congenital neurological disorder which is characterized by facial paralysis and the inability to move the eyes from side to side. Most people with Möbius syndrome are born with complete facial paralysis and cannot close their eyes or form facial expressions. Limb and chest wall abnormalities sometimes occur with the syndrome. Most people with Möbius syndrome have normal intelligence, although their lack of facial expression is sometimes incorrectly taken to be due to dullness or unfriendliness. It is named for Paul Julius Möbius, a neurologist who first described the syndrome in 1888.[1]
Möbius syndrome (also spelled Moebius) is an extremely rare congenital neurological disorder which is characterized by facial paralysis and the inability to move the eyes from side to side. Most people with Möbius syndrome are born with complete facial paralysis and cannot close their eyes or form facial expressions. Limb and chest wall abnormalities sometimes occur with the syndrome. Most people with Möbius syndrome have normal intelligence, although their lack of facial expression is sometimes incorrectly taken to be due to dullness or unfriendliness. It is named for Paul Julius Möbius, a neurologist who first described the syndrome in 1888.[1]
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Dear Teacher:
I'm giving you this because I want you to understand more about me. You'll see I am just like everybody else in your class in lots of ways, but in some ways, I'm not the same. I need you to know how I am “different” from the other kids in our class so you can help make school a safe place for me.
I have Moebius Syndrome, which means that I have a paralyzed face. I was born with it. I can't smile, close my eyes completely, blink, frown or show any facial expression. Believe me. I would have much rather been born with something else because it really hurts at times to have this! Maybe the hardest part about Moebius is that it is so rare and hard for others people to understand. Who ever thought that somebody could never smile?
